A chronic pain survivor from Complex Regional Pain Syndrome (CRPS

By Fila Paragas. I am a chronic pain survivor from Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD). Recently, I started thinking about pain in our lifetimes. Pain affects all of us during our lifetimes whether we are male, female, young and old. It can come from minor occurrences such as…

via Opinion: Pain in Our Lifetimes — National Pain Report

An Open Letter to the President’s Commission on Combating Addiction and the Opioid Crisis: You Need to Hear a Tenth Voice — National Pain Report

IMG_1393By Richard A. Lawhern, Ph.D. This article is edited from correspondence sent to the Office of National Drug Control Policy on June 17th, 2017. Others who wish to make their voices heard may also do so by email to commission@ondcp.eop.gov . — — — With many others, I listened and watched for two hours of…

via An Open Letter to the President’s Commission on Combating Addiction and the Opioid Crisis: You Need to Hear a Tenth Voice — National Pain Report

Second Annual Long Island CRPS/RSD

IMG_1390By Jordan Lusby. Taking a shower is typically a soothing time that people use to reflect on the day. However, what if those little drops of water caused you to feel extreme pain? Each drop feels like you’re getting repeatedly stabbed with sharp needles, and you receive electric shocks as the temperature changes. You aren’t…

via Chronic Pain Patients Organize The Reflex Sympathetic Dystrophy Syndrome Association’s Second Annual Long Island CRPS/RSD Awareness Walk — National Pain Report

Vets denied access to congressman because he’s a chronic pain suffer!

by Ed Coghlan A veteran with chronic pain wants to talk to his Congressman—and another attempt to do that on Monday failed. Robert Rose is a 51-year old Marine who believes the Mountain Home VA Center in Johnson City, Tennessee has been denying him care and has been quite vocal about it, (Here are some…

via Vet With Chronic Pain Denied Access to his Congressman — National Pain Report

Veterans with Chronic Pain Fighting for Healthcare

By Staff. National Pain Report recently ran a series of stories regarding one Veteran’s frustrating attempt to raise his voice for all Veterans. We then asked YOU to share YOUR stories, and here are a few of the stories that we have received so far. I’m a recently retired Army Reserve Officer. In 2013 while…

via YOUR Story – Veterans with Chronic Pain Fighting for Healthcare — National Pain Report

It’s been awhile

Hey everyone is been awhile I know. I really wish I works have justy stayed the course and wrote everyday, but I’m still in a car on my accident and week I want sure I’d wiring would hurt or add to my case, ands well as bad as I am I can’t risk somone taking something I say out of context. So right to the point. The last month has sucked. I have now become bed ridden more and more. I started doing my crafts I was telling you about and well if you know me you’d know I just go all out on anything I do. Well long story short I crashed my body. I sad thing is its not like I ran sons the block or really over did it at the gym. I mean I still can’t even get to the gym due to pain levels. It’s simple things like getting up and sitting for an hour next to my kids helping them wth school, doing dishes, sweeping, and painting a frame. By just find anything that is not high impact at all for anytime more then 2hrs puts so much strain on my body. My neck and head ligaments and nerves keep getting re ripped amd am left not being able to walk, it cause sick wow spread pain that literally I can’t walk. Now enough with my sob story. I got a order yesturday amd well it was from my grandma..lol… but I’ll take it. Lol. I haf been laying down taking as easy as one could for like a week straight, I popped up all happy and was like yay, I get to go get this stuff together and ready for shipping. Within grabbing my second item i relized real quick that I needed to be down, my pain was so bad it was making to a paint off vomiting. Have you ever been in so much pain you have to vomit. With me is extremely impenetrable that I dint vomit.
1) It makes my pain worse
2) I can’t take new medicine until next dose
Both not good when your in that much pain.
Anyhow, I have to go my medicine at target today. If it wasn’t for my daughter I wouldn’t even be able to do that. So here’s my next adventure. There is another craft fair on December 5th and 14th. Do I want to attempt this? If i haf been writing this whole time, you’d know how the last one went. Not good. Not only did I not get any sleep that night, but I was sick, not sure if I ate somthing bad but it was not good, my family so helped me. They briught ask my stuff in for me. It was just super sweet to see how they all supported me. You may ask why? Why do something like this in my condition? Well sanity is probably the best answer. Being sick in this body and home gets to a person. Well Ive decided instead of doing a bunch of didn’t items, we’d only do my book folded hearts, starwars, dino foot, and maybe a couple loves. Then Estrella was going to do these cute neckalaces that she’d add book quotes that magnifies the certain words. I’ll do a tutorial on lilshabbychic for you on that. Anyhow the craft show got rained out so no one showed and I got so bag I had to go sleep in the van for like an hour. My husband kept telling me to go home and he’d stay. But i just couldn’t do it to him or myself. Now do I want to do this again… uuuggh. I just don’t know.but
1 it’ll be me and Estrella
2 is simple projects and i need something to do to keep my mind off my pain anyway. I fold books while in bed.
3 i can get rid of the books i already have folded. .lol..
4 there cute
5 i think people will but them for Christmas presents..
So what of i can’t make it to the end? I’m wondering if I can say in disabled on my application so if i have to pack up early they will all invite me back in the future? Not sure but it’s only like $40 and if i sell only 1 book it’ll pay for it. So ya that’s 1 thing on my prayer list right now.

Journaling with Chronic Pain

Have you ever found yourself looking at your life each moment and say, “my life sucks right now”. I have and unfortunately it happens more then Id like to admit. I then start to reflect and say, “no H (I will refer to myself as from here on.) you are just having a bad day, remember that you was able to go out to eat with the family the other day, and get a frame painted last week, what about you playing with dinosaurs with J yesterday.” Sure it was only on the bed but hey, I’m still living and God is still blessing me with little moments in my life. Due to my head injury I forget all my memories quite quickly and it takes me a long while to think of them, eve when I’m reminded of them I still cannot recall that much.

So, I decided to start journaling. I went onto christanbook.com and found the perfect journal. I am looking forward to writing down what I recollect each day and have a daily reminder of what I did or did not do, then when I’m having one of those “my life sucks” moments I can go back and see and fight the enemy with the good things, however small, and say, my life may be hard, my pain may limit me from many things I use to love. But God has a plan for me and its all the things in this little journal that He is using to build me up for the plan He has for me in my life.

I will let you know how this goes. I pray I use it everyday. I hope this brings me a better outlook on my pain levels. I can see what I’ve done before and see if it has anything to do with body pain crashes, who knows maybe I can help myself see things I’m doing in my life that is hindering healing, or at least causing to inflame.

Anyway, I’ll give you an update as time goes on.

If any of you journal what has been your experience?